Episodes
Monday Sep 30, 2019
INSIGHT - INDOMITABLE TIN SOILDERS REDEFINE RESILIENCE
Monday Sep 30, 2019
Monday Sep 30, 2019
INDOMITABLE TIN SOILDERS REDEFINE RESILIENCE
Pictured L-R (Mark Farrell, Hillary Weldon, Amanda Cali and Terry Eleftheriou
Imagine your body seizing up. Unable to walk, bend over or not being able to simply wave hello or goodbye. Hillary Weldon and daughter Whitney Weldon know all too well how Fibrodysplasia Ossificans Progressiva (FOP), an extremely rare degenerative disease has impacted their lives. Amanda Cali is also well versed in this condition that her son Ian Cali was diagnosed with at age 5. Mark talks with Hillary, Whitney and Amanda about the onset to the vital clinical trials that are being conducted and how they feel it is their mission to educate the public as well as doctors globally on this rare disease. And no better conduit to enlighten the world then through a riveting full length documentary film they created aptly named, “Tin Soldiers”. Amanda Cali and Odette Schwegler are the Executive Directors and Assistant Producers are Hillary and Bill Weldon. Movie trailer: https://www.facebook.com/watch/?v=2163573907045300
About: Fibrodysplasia Ossificans Progressiva (FOP) is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone (ossified), forming bone outside the skeleton (extra-skeletal or heterotopic bone) that constrains movement. This process generally becomes noticeable in early childhood, starting with the neck and shoulders and proceeding down the body and into the limbs.
Questions, please email: info@tinsoldiers.org
Special acknowledgements to the invaluable help and contributions of Theresa Reid – Beyond Organics Howell NJ, Terry Eleftheriou of Shipwreck Grill – Brielle NJ and Kim Kiss of The Bee in Sea Girt and Point Pleasant Beach, NJ.
Have Mark speak at your company, organization, conference and retreat to increase morale, productivity, confidence and more. Mark also has riveting talks for students k-12 and college on overcoming adversity, anti-bullying/anti-teasing, mental health, drugs/alcohol, celebrating differences, self-entitlement, senior send-off and more. All of Mark’s talks are from his vast life experience. Reviews, videos, booking info and more at: www.markfarrellmotivation.com Email: mark@markfarrellmotivation.com
“Mark’s willingness to use his disability to uplift others is both generous and remarkable. His message resonates with all of us who have worked hard to overcome life’s adversities. If you’re looking for a podium speaker, look elsewhere. Mark stays on the move and keeps the audience engaged. Thank you, Mark”
Johnny Callebs KAPP Executive Director
“Mark Farrell is a dynamic speaker who will captivate the audience by sharing his personal story of how he was able to overcome challenges in life and worked his way to success. We scheduled Mark for 45 minutes, but our students were so engaged in his story that Mark spoke for over 1 hour. I still have students approach me and discuss Mark's message and say, "if he could do it, so can I”
Christine Crielly School Counselor
Holland Brook School NJ
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Catharine Leahy - Speakers Chair Princeton University